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Profile picture for quahog @quahog

@deidre77 so sorry that you are going through this. BCG can be a real challenge but the evidence for it impacting reoccurrence is pretty convincing. I had reactive arthritis after my 12th treatment and had to stop. Fortunately I have had clear cystoscopy for the last year so I’m hopeful that I’ll stay NED. There are alternative treatments to BCG. Have you discussed these with ur Doc?

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Replies to "@deidre77 so sorry that you are going through this. BCG can be a real challenge but..."

@quahog
Thank you for the response.

You are a champ even having been able to endure 12 treatments before it had to be discontinued.

Happy news, of course, knowing that for the past year you are NED. May your success continue.

I will continue on with the treatments, grin and bear it as we all do but still speak to my doctor.

Best wishes.

@quahog I read where BCG can cause joint pain, so I’m curious do you have any autoimmune disease prior to BCG therapy? Did they put you on meds for reactive arthritis? It can be very painful.