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I’m curious if anyone has similar symptoms?

Chronic Pain | Last Active: 9 hours ago | Replies (33)

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Profile picture for susiesmith @susiesmith

I also have nerve pain over my body. It started 2 years ago. I've had many tests from a Neurologist, and many more things, but no answers.
I had lumbar decompression surgery last November which left me worse than before. Now they are saying I need that 2 day 12 hour lumbar spine surgery. I am desperate and have tried everything else. I'm also tole the surgery would only correct my lower body if at all. When I asked the surgeon about the nerve pain in my upper body (tongue, chest, stomach, hands, etc.) he just shrugged his shoulders. I'm glad to see a thread about total body nerve pain. I take hydrocodone several times a day that just takes the edge off.
I'm in bed a lot and my quality of life is low. Any help?

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Replies to "I also have nerve pain over my body. It started 2 years ago. I've had many..."

@susiesmith I wish I could help you. I had back surgery on L4 & L5 2 years ago and it has made my life miserable and now have sensor motor polyneuropathy with all the "fun" stuff that comes with that. Best of luck.

@susiesmith
Be very careful about having extensive spine surgery. The recovery is horrific and can make things even worse. I had T10 to S1 fused 2 years ago and I’ve still not recovered well enough to stand or walk more than 5 minutes.
Have you seen a neurologist for your symptoms? Neurosurgeons just want to cut.
Also, Physical Therapy over the long term can help. Be sure to be faithful about exercising between sessions.