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Some thoughts after 10 months of nebbing saline

MAC & Bronchiectasis | Last Active: Mar 31 1:00pm | Replies (42)

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@bronchiectasaurus thanks for your update (and yay for your ride!) After two rounds of double pneumonia last Feb/March, a cracked rib from coughing and lower lobes collapsing because I couldn’t breathe deep (from the rib) pulmonologist had me start airway clearance 2x per day with levalbuteral then 3% saline then bevespi inhaler. Before that, Mayo pulm THOUGHT I had MAC based on CT but 2 broncoscopies were negative growing anything. She told me I’d cough up a more when starting nebbing saline but it would get to a point where I don’t cough up much. Bronc and sputum were positive for MAC in May last year (maybe because they’d finally grown enough during the bouts of pneumonia?). Started 7% saline after that (still levalbuteral first, saline, Bevespi) and pulm was right… by Aug. I was hardly coughing up anything other than clear. I continued 2x per day until a negative sputum in Oct. Backed down to 1x per day. Made it through the flu/germs that went around school without getting sick. That was a first! Why I wasn’t nebbing with saline 30 years ago I don’t know! Would have saved me the yearly bouts of nasty bronchitis/pneumonia that have left lungs scarred!
But, these past few weeks (in FL) allergies have been awful! I have noticed a difference and am back to 2x per day. I do think the nebbing saline has kept my lungs clear so the germs can’t grow. Pulm said the idea is no mucous in lungs so MAC (or other germs) has nothing to stick to and grow. So maybe the trick is during allergy season we increase to clear out the pollen! I do feel so much better when I neb 2x per day! I hook my Aerobika to my neb cup so I do them at same time. That does save a bit of time but will look into the eRapid neb also.

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Replies to "@bronchiectasaurus thanks for your update (and yay for your ride!) After two rounds of double pneumonia..."

@susanocl I have the same issue with allergy season - moving between Texas and Minnesota, I get a double dose. Today my patio table is yellow with mesquite, acacia and huisache pollens. When I get to Minnesota in May, it will be pine and birch pollens.
Something that helps me during allergy season is to vigorously manage the allergies. With pollen, I use daily fluticasone nasal spray plus twice daily azalastine (Astepro) spray, in addition to normal airway clearance (this was recommended by my pulmonology team.) In addition, we use HEPA air filters indoors, and I add a daily antihistamine tablet during high-pollen weeks/months.
Do you use anything to minimze pollen impact in your nasal passages?

@susanocl
I have had the same issues with pollen, rib displaced, sore muscles from coughing making it difficult to clear airways (pain from coughing). I am masking when I go outside, and walking inside on a treadmill until the pollen subsides. Would like to talk further if interested.