Connect
← Return to Do late effects of sinus radiation contribute to TBI/concussion?
Discussion
Do late effects of sinus radiation contribute to TBI/concussion?
Head & Neck Cancer | Last Active: 2 days ago | Replies (29)Comment receiving replies
@ponygirlnd @mojo244
Just today I took the time to read old posts from the three of us, it's been about a year since we first posted in Head&Neck Support Group. We have had different types of cancer, the common factor is radiation and side effects from that. It's really helped me to reconsider treatments for migraine/neck issues and blood vessels damaged by radiation. Also to appreciate what has been good in the years surviving cancer. I've appreciated your senses of humor too!
To think of the similarities in side effects from radiation and wonder why it is no one put it together and talked about what might happen years from then. I think there's a bizarre denial of the worst of it. If they told us, would we have gone ahead with radiation? Or were our chances slim to survive? And they didn't care what came next, just as long as we got the medicine(radiation).
Thank you both for being there!
Replies to "@ponygirlnd @mojo244 Just today I took the time to read old posts from the three of..."
@jw9 and everyone : look.at how people have to deal with chronic pain. We all hate the meds and wish we could find a treatment that would fix the root cause instead. One thing I did find which helped for a long time was daily traction for neck spasm headaches. That was great, reducing pain 80%. But other stuff took over and I’m on chronic pain meds for quality of life even after spend lots of time and out of pocket expense on trying to treat the cause first. I do give my pain as prayer. Doesn’t make
Pain go away but at least
I know it going to a good cause. The trick is putting up with being a lab rat until the right pain med works w/o unlivable side effects. And biggest barrier is finding a Dr that 1. Understands and 2. Is willing to prescribe. This forum is great, especially without resources in travel distance since travel is such a barrier also.
Connect
@jw9 yes it’s great to have friends that understand what we’re going through and living with 24/7.
A sense of humor is needed from all of us or I think we’d go crazy 🤷♂️🤪
I appreciate your kind responses!
Jody