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Inclusion Body Myositis: I'd like to talk with others

Autoimmune Diseases | Last Active: Oct 20, 2023 | Replies (97)
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@kanaazpereira

Hi @dexter651,

Here is some information from Mayo Clinic about IBM, muscular dystrophy, including diet, coping and support: http://mayocl.in/2taBIXg

I'm tagging @rama, @tonyc55 @jamesthee @awhall75 @splinte @dk @bonnieh @jmbjar @mklam @gailfaith who have posted about IBM or other forms of muscular dystrophy in the past, and will hopefully join this conversation to provide some support and insights.

@dexter65, have you started the new medication? How is that working for you?

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Replies to "Hi @dexter651, Here is some information from Mayo Clinic about IBM, muscular dystrophy, including diet, coping..."
mklam | @mklam | Jun 11, 2017

My husband who has been recently diagnosed with IBM has started a program with physiotherapist, occupational therapist and gym trainer. In just two weeks he is steadier on his feet, walking better and feels more balanced. Miracle? No I don't think so but any little improvement that may delay further muscle weakness is worth celebrating. A small improvement makes a big difference in mood and hope to keep walking longer. There seems to be wisdom in using your muscles. Merle in Montreal

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