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Glioblastoma: Anyone have difficulty walking, use of legs and arms?
Brain Tumor | Last Active: 2 days ago | Replies (20)Comment receiving replies
@gbmcaretaker
Thank you so much for your detailed reply. It has given me a better understanding of this condition, and I no longer blame the medication for being ineffective or the doctors for not having better treatment options.
Are your physical therapy (PT), operational therapy (OT), and speech therapy sessions once a week? Are they helpful?
Does your husband takes Keppra twice a day for seizure as well? Does he has any depression side effects?
Thanks,
Rachel
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@rachel2025
The frequency of PT, OT and Speech has fluctuated but once a week for each would be beneficial. We have jumped around to difference places because it’s so hard to find physical therapists that specialize in neuro. It’s hard to get appointments sometimes, but if they have experience with stroke patients or neuro it’s worth the wait. For speech, I was happy with Expressable which is virtual, but it was not covered by our insurance.
He was prescribed Keppra and had stopped taking it but then in January he had a seizure for the first time. So listen to your doctor and take it if needed. He is now taking vimpat twice a day and he hasn’t had any more seizures.