You are not alone. My husband’s first symptom was weakness in his right hand and leg, and it has not improved in the 15 months since it started. Due to the location, his tumor was inoperable, and he went through chemo and radiation. Currently he has difficulty speaking. His care includes the same infusions every 3 weeks, he is taking 3 mg of Dexa and a weekly chemo pill, OT, PT and speech therapy.

So I would say yes, that what your husband is experiencing is common for GBM and it seems to depend on the location of the tumor. We started off and diagnosed at MD Anderson, which did not offer much after his initial treatment. After searching and going to a few other places, we landed at Mayo in Jacksonville and I can’t tell you how grateful I am that we found an amazing care team here. I wish we would have found it sooner. We are taking one day at a time and make the best of every moment.