Hello @shirleyslominski, and welcome to the NETs support group on Mayo Clinic Connect. I am glad you found this forum so you can meet others who have NETs and those who have had the Lutathera treatment.

I feel concerned that you are not sure that your doctor has the answers you need when you ask questions. My first thought would be to consider having at least one consultation with a NETs specialist. Not all general oncologists are specifically trained or experienced in the treatment of NETs. There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Carcinoid Cancer Foundation with NET specialists in the U.S. and worldwide: https://www.carcinoid.org/for-patients/treatment/find-a-doctor/. There is great value in seeking a second opinion regarding a rare cancer such as NETs.

Regarding your reactions to the Lutathera treatments, does your doctor offer any suggestions? A number of Connect members have had these treatments, with good results. I would like to invite them to discuss their experiences with you: @vinnie@694, @dbamos1945, and @sophiarose.

Is it possible for you to get a second opinion?