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Replies to "Hi, I've been diagnosed with acqueduct stenosis, brain surgeon said my ventricles were not large enough..."
Brain & Nervous System | Last Active: Jan 1 9:19am | Replies (28)
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Hi, I've been diagnosed with acqueduct stenosis, brain surgeon said my ventricles were not large enough for a shunt. I'm 51 years old. I guess I'm headed toward having normal pressure hydrocephalus, but I'm not there yet.
Replies to "Hi, I've been diagnosed with acqueduct stenosis, brain surgeon said my ventricles were not large enough..."
Thank you for asking as I’m frustrated . The neurosurgeon I consulted with said my ventricles aren’t large enough for a shunt. The neurologist implies I have to have a clinical presentation of NPH to qualify for surgery, meaning that I have dementia full time . Right now I’m episodic, and I’ve been hospitalized 9 times. It seems that heat and exercise are difficult for me.
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Hi Erin,
I confess that I'm not personally familiar with hydrocephalus, but it seems odd to me that you could not be fitted for a shunt. Shunts are used to treat pediatric hydocephalus and in adults. Was size the only issue for ruling out a shunt? Perhaps time for a second opinion?