Bahhhhhh, uPSA going up : / ...

Posted by surftohealth88 @surftohealth88, Mar 10 6:05pm

I feel like puking, but maybe later, let me first vent my fear here *sigh

We had monthly uPSA since October, and it was always 0.014, or < 0.015 and than last month it came 0.018 and I tried not to panic (hardly successful in my case) . I was hoping it was just a glitch and that my husband was probably dehydrated and he was skiing the whole day before etc etc, but result came today :
uPSA = 0.026

ARGHHHHH !!! Somebody just shoot me : (((

Luckily my husband, as always, is much calmer then me and he just sent a question to his RP doctor and we are waiting for the comment.

I read some articles where doubling time for uPSA does not have the same implication as levels of regular PSA ( like 0.014 going to 0.028 does not have the same weight as 0.1 going to 0.2 and that is the only straw I am now "hugging". : (((((((

I mean, with such aggressive cancer not having a BCR at some point would be a miracle , I just hoped for a year or two of some respite, but nope : / ... Oh well...

If you had uPSA that was slowly rising - what did your doctor say ? At what point it really is considered a definite BCR ?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for jc76 @jc76

@surftohealth88
That's not a picture of you hubby is it?

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@jc76
No, @jc76 , ha ha, well, my husband is in great shape , however at 70 not so much ripped as the that young dude on that photo ; ).

BTW, my hubby is kite-surfer and wind-surfer, he is not riding huge waves, thanks god /\. ; ) Today he is skiing at Kirkwood while I do my "daily PC research" ; ). XP Well, somebody has to, ha ha, and I am not complaining - I am elated that he is in sunshine and collecting those RBC counts : ))). If he even needs RT and ADT , those will be effected .

PS: I hope that you and your wife are doing well and that doctors found the way to control her sugar < 3

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Profile picture for edinmaryland @edinmaryland

@readandlearn

thanks Melvin
I checked out your profile. When did you have RARP? How long after did you start getting detectable PSA (is this the ten years you note in the profile) ? thanks very much
Ed

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@edinmaryland RARP in March 2015. PSA was undetectable (< 0.1) until June 2025. So yes, ten years before local recurrence after surgery.

M

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Profile picture for edinmaryland @edinmaryland

@surftohealth88
went from four tests- same lab- undetectable to recently detectable 0.014 (same lab)
not what I wanted on top of abscessed (infected) lymphocele ( after RARP) and lymphedema
As I am learning about this, radiation can make the lymphedema and lymphocele worse yet for the BCR salvage radiation may be on the table. I have no idea where this will lead. I will see my urologist NP this week. But as of now, I will also seek additional opinions

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@edinmaryland Ed, The one comfort in all the misery you have been going through is that your PSA is still very low, relative to anything that is clinically significant (typically 0.1). Definitely something to keep an eye on, but I think that most docs would think that you are a long way from a BCR, especially given that there could be other reasons for the uptick in your PSA. I know, the anxiety is still there, but it sounds like you are staying on top of things, and that is the best thing you can do for yourself. Sure do hope you get all the other, post-surgical issues resolved soon and that your PSA stays way down low, even if it is above the limit of detection for your uPSA tests.

All my best,
M

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thanks Melvin
this really helps. I am in no hurry for 'Round Two'
all my grandparents made it into their 90s one until 105, so maybe there are some good genes counterbalancing all of this.
Thanks to everyone on the list

Ed

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