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@labrown and @dlssell, you both mention your husbands taking 20mg daily Memantine and having adverse symptoms.

I do not know anything about this drug, but I was specifically curious about dosing because of totally different medications I currently take I had sworn off of previously. Lower doses and frequency changes are what has helped me. You, of course are in different situations than I so I do not want to pretend to recommend doing this, just maybe something to run by doctors.

Here is a summary of the drug, Memantine that you may be totally familiar with by now, but in just in case you are not:

- Mayo Clinic Memantine (Namenda) Overview
https://www.mayoclinic.org/drugs-supplements/memantine-oral-route/description/drg-20067012
@lkbous, you mention your husband’s neurologist took him off Namenda because it is meant for Alzheimer’s and he doesn’t have that type. Are you comfortable, would you explain a bit more about his experience. Why did he start the drug? What information about his condition has been explored/confirmed? How long did it take to notice a difference once he discountined?

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Replies to "@labrown and @dlssell, you both mention your husbands taking 20mg daily Memantine and having adverse symptoms...."

@jlharsh I am aware of the benefits of Memantine. The problem is the side effects my husband experiences. He started with a low dose Memantine along with Aricept, but once we realized his body wouldn’t adapt to the Aricept, that was discontinued and the Memantine was increased. The hallucinations, delusions, fears and agitation started then.

@jlharsh H started namenda after his 2nd visit to his first neurologist. I never had much faith in that Dr. H got into the A/D program at UCLA and I am so pleased and grateful. His new neurologist there took him off of it because even though he doesn’t have a solid diagnosis, it is not Alzheimer’s, it might be vascular with some frontal lobe action. He had irritation, constipation, dizziness, loss of balance, fogginess & heightened confusion. He says he feels a world of difference and I can actually tell a difference in him, as well. He has been off of it a little over 60 days. The difference was slow until there was suddenly a wow. I can’t say exactly what the timing was.

@jlharsh
Hello, I was only recently diagnosed with Alzheimer's and am experiencing major upset and panic. I have been attributing my forgetfulness and brain fog to chronic stress and lack of sleep for the past year and a half. I hoped that if I could manage the stress things would improve.... anyway, finally saw a neurologist and blood test of ABETA 42, 40 and PTA 217 resulted in highly likely amyloid buildup. Am reading as much as I find on treatment, medications, etc. I have to find a neurologist who specializes in dementia. I take a blood thinner so some of the medications would not be suitable. They all sound awful as far as side effects. I have been member and get Daily Digest daily for a few years , just added this group to follow. I hope it remains active. One group that I followed for over two years just faded away and I miss those communications a great deal.