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@hillx001 Your experience is very similar to mine. Thanks for sharing. Do you take anything by mouth? I still sip a little ice cream laced coffee in the morning and a swallow of 7-up or some other carbonated beverage at other times in the day. Mainly, to clear phlegm. Take care. PS: Are your tube changes regularly scheduled or do wait until the balloon deflates or other problems?

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Replies to "@hillx001 Your experience is very similar to mine. Thanks for sharing. Do you take anything by..."

@omaest
I do not take any solid food by mouth at all. I do take a few sips of carbonated water with some flavoring added each day to freshen my mouth and it helps to remove the phlegm. It usually causes a lot of coughing, so I limit my intake to a few small sips. My tube changes are set up to be at 6 month intervals automatically.
All good wishes,
Gary

@omaest
I have not crossed the feeding tube threshold at this point, so I’m still eating solid food. But, I may be experiencing some early problems that may include silent aspirations or aspirations when I eat. Because I cough. I’m setting up an appointment with the Mayer clinic to have another swallow study and related test. Hang in there.