Starting ADT

Hey! Welcome to the "club" my husband got diagnosed a year ago when his PSA was almost 300! Then Gleason almost all 8 and 9s and psma scan showed all over his body! Lungs, lymph nodes, bones etc.
They said triple therapy and he refused at first! He'd rather die than be castrated! I cried and was angry that if I got breast cancer or something I'd cut them off or whatever is needed if it meant more years with the family..
He finally relented but refused lupron for different reasons and actually oncologist wanted him to start with firmagon first then lupron but my husband continued firmagon, later zytiga pills and Prednisone (he did some supplements for a while and it wrecked his liver but it got back to normal once he quit those) then over the summer he did chemo docetaxel and did very well with it.
Overall he's doing well, no sex drive but I told him I'd have no sex life either way!
He was tired from chemo but is back to normal somewhat now
His PSA is 0.2 now and another psma pet scan after chemo showed great improvement!!
It's scary though
Last month his PSA was 0.19 last week it was 0.2 so technically it went up 0.01 so we'll see what they say next month.
He exercises daily and eats perfectly and doesn't look like a cancer patient at all, no pain, the urge to pee all the time is gone but he doesn't sleep well because of hot flashes. Gabapentin helped with that and also his mood but now the PSA went up a tiny bit so he stopped that too.
It's all so scary. Hang in there

@beaquilter You should not interpret 0.19 and 0.20 as different numbers. It might be difficult to get the lab to tell you their actual observed standard deviation at this level, but a rule of thumb is to assume repeatability is no better than plus or minus 10%. Which means if the true result is 0.20 a repeat test on the same sample could be as low as 0.18 or as high as 0.22. If testing is done every few months and results don't differ by more than 0.02 I would want to see at least three increases before assuming a trend.

Hey! Welcome to the "club" my husband got diagnosed a year ago when his PSA was almost 300! Then Gleason almost all 8 and 9s and psma scan showed all over his body! Lungs, lymph nodes, bones etc.
They said triple therapy and he refused at first! He'd rather die than be castrated! I cried and was angry that if I got breast cancer or something I'd cut them off or whatever is needed if it meant more years with the family..
He finally relented but refused lupron for different reasons and actually oncologist wanted him to start with firmagon first then lupron but my husband continued firmagon, later zytiga pills and Prednisone (he did some supplements for a while and it wrecked his liver but it got back to normal once he quit those) then over the summer he did chemo docetaxel and did very well with it.
Overall he's doing well, no sex drive but I told him I'd have no sex life either way!
He was tired from chemo but is back to normal somewhat now
His PSA is 0.2 now and another psma pet scan after chemo showed great improvement!!
It's scary though
Last month his PSA was 0.19 last week it was 0.2 so technically it went up 0.01 so we'll see what they say next month.
He exercises daily and eats perfectly and doesn't look like a cancer patient at all, no pain, the urge to pee all the time is gone but he doesn't sleep well because of hot flashes. Gabapentin helped with that and also his mood but now the PSA went up a tiny bit so he stopped that too.
It's all so scary. Hang in there

Wow 300 psa I thought mine was high at 59. I was started on nubeqa and eligard shots which brought my psa down to 17. Encouraged by jeffmarc to see oncologist; started chemo had treatment and Psa has been undetectable. So if you need help there many on here to help and encourage you.

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@asolidrock
At one of the Mayo Clinic monthly meetings, the doctor mentioned that the highest PSA he saw was over 20,000.

I have heard a lot of people in the high hundreds and even thousands in the online meetings I attend every week.

Ate the Dr's able to help them being that high?