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Head & Neck Lymphedema

Head & Neck Cancer | Last Active: Mar 15 12:26pm | Replies (6)

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I had tongue and lymph node cancer in 23-24. I had serious lymphedema and 2 wonderful Mayo OTs helped me a lot. I also recommend the cancerrehabpt.com. She does videos on managing lymph for H and N cancer patients. Learn to massage your self. I still do it twice a day. My surgeon also prescribed massage by my OT.

I also use a lymph pump made by Tactile Medical. It uses light air pressure massage and its wonderful! It requires insurance approval which can be difficult. My Mayo surgeon took care of that for me. Ask your doc to prescribe it.
I also still wear a compression band on my head at night. I wore it almost full time at first. My Mayo OT gave it to me along with a "chip bag". Its a soft pouch of foam rubber pieces that help to disperse the lymph. Here is a link to the head gear https://www.designveronique.com/post-surgical/facial-wear/universal-facial-band/
Good luck. Its all a bit overwhelming, I know. But once you get into a management routine it will feel better.
I'm 2 years out and my surgical scar has really faded and I have almost no swelling now. So it can be done!

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Replies to "I had tongue and lymph node cancer in 23-24. I had serious lymphedema and 2 wonderful..."

@sandy8043
Thanks for sharing your experience with me, when I figured out what was happening I felt discouraged especially when my recovery has come so far.
It is what it is and now we must deal with it…