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@irenea8 Thank you for the reply. My thoughts were, considering all you have responded to in posts, that you have been dealing with related issues for a long time. Nearly 28 years it appears, that is a long time, long journey.
I hear you, "So at my suggestion he tested me for Pseudomonas ." Talk about having to be your best advocate...and researcher.
"That is my story in a nut shell." It may be your story in a nutshell but the story in reality would never fit inside a nutshell...it's to big a history with many difficult and questioning times that you probably had to face.
I would imagine testing has improved since 1998, early 2000's.
My symptoms began in 2020 ..It was welcomed along with all the Covid precautionary measures put in place at that time. BE diagnosed in 2022.
Thank you again for the detail and time factor information.
Barbara
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@blm1007blm1007
When the Augmentin did not work it was a clue that I may have picked up Pseudo since it does not respond to it. I had read that. I was surprised to learn that the prior sputum tests had NOT included testing for Pseudo. The strange thing about my journey is that up until 2020 I did "ok" with just coughing up mucus once a day routinely. I still had weight on and did ok if not great. Lived a fairly normal life. Something happened very rapidly in 2020 and my whole situation changed. I coasted along for almost 20 years without even nebulizing (did not even know about it stupid me) and then it hit big time. Still no clue why. My pulmo called it "hitting a tipping point" but that is rather vague.