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Medication, Autoimmune Diseases
Autoimmune Diseases | Last Active: Mar 17 2:42pm | Replies (22)Comment receiving replies
Hi again, all! Hope everyone's doing well. I have a question about muscle pain with lupus and MCTD: my rheumatologist and I agree that my lupus and MCTD diagnoses explain my joint pain, and Methotrexate has helped tremendously, which is great.
But since my symptoms began in October 2025, I've also experienced muscle pain, concurrent and as troubling as the joint pain. My rheumatologist doesn't believe the muscle pain is caused by lupus or MCTD, and tested my blood for other possible muscle wasting ailments, which I thankfully tested negative for.
Question is: has anyone experienced distinct muscle pain with lupus or MCTD, and, has anyone's doctor specified whether or not muscle pain can be caused by either of these conditions? Thank you!!
Replies to "Hi again, all! Hope everyone's doing well. I have a question about muscle pain with lupus..."
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@sarahintexas I am diagnosed with Lupus and suffer terrible muscle pain in my legs, especially. I've been a chronic pain patient for over 25 years, including a failed spinal fusion. It is believed that I also have MCTD, which would make sense following an earlier diagnosis of hypermobility and other conditions. Nobody has ventured into the "whys" of my conditions and/or symptoms, so I can't offer you any help there. The pain from autoimmune far surpasses the chronic lumbar pain I had - this is a different level, entirely, and unbelievably.