@penny57 I am so sorry to hear about those side effects, they sound horrible. Was that your first infusion?

I know Drs often minimize reports of side effects. Sometimes I wonder if that's so they don't have to deal with the problems from it, so they blame the side effects on another drug, illness or something else.

That's one reason that, so far, I've refused any of the bone meds. I can't take Forteo or Tymlos due to parathyroid issues, so that leaves Evenity and bisphosphonates as my only options. Evenity is so new, and bisphosphonates don't offer much fracture prevention. For now, I am just doing all I can to remain fracture free.

I hope your symptoms resolve soon. Keep us posted.