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Pseudomonas infections

MAC & Bronchiectasis | Last Active: Mar 24 11:19pm | Replies (72)

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Profile picture for irene5 Irene Estes @irene5

Also, and I forgot because I had too many kids texting me as I wrote that - the pseudomonas hit in 2023 after a bout with RSV . That’s the same year they really started talking about my bronchiectasis which has gotten progressively worse. So MAC first followed by Pseudomonas and bronchiectasis together. I’m guessing the BE was there all along and certainly after my lung collapse but not significantly an issue till 2023. (irene5)

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Replies to "Also, and I forgot because I had too many kids texting me as I wrote that..."

@irene5 Thank you for responding.
As I indicated to irenea8, it was my belief that you both had a long journey and why I thought it would be good to understand it, not just for me but others in terms of how things can progress for different reasons and to understand the why of you both having much experience and information to pass on to us.
One thing for sure, timing is everything.
I say that because it does appear for those of us just being diagnosed in the last few years with BE and infections....we are lucky with all that has been learned in the last two decades by the pulmonologists who, we can basically somewhat can say about them, educate themselves on all things BE, Bronchiectasis.

I feel lucky, fortunate, and blessed that my PCP finally looked at me and said : "Time for a CT Scan and not just the Ultra Sound or the X Rays. " That was after my continually seeing him and saying "Something is wrong."

I was also fortunate that I knew about National Jewish since the 90's and had insurance that would cover the week's long visit in 2023. Ventured up there to NJH since I realized the local pulmonologist was lacking.

P.S. I think; I may be wrong; in your case, Irenea's case and mine...stress, depressed immune system played a big role in bringing about the journey????? As they say "life happens and we best be ready for it".
Thanks for the details of your journey.
Barbara