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Pseudomonas infections

MAC & Bronchiectasis | Last Active: Mar 24 11:19pm | Replies (72)

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@blm1007blm1007
I wonder if having the name Irene is a liability?
In my case I got a very bad flu type virus back in 1998. At some point the coughing up of mucus that typically happens with a virus turned infection and would not clear up. One round of antibiotics helped but it built back up PLUS got C Diff. that took one year to get over. Afraid of antibiotics and C Diff so Coughed up mucus routinely once a day using breathing and position (just figured out myself). 2001 saw pulmo. Sputum grew nothing but CT abnormal with ground glass opacities. Dr said he did not know what I had and airways were still intact but he would not "rule out Bronchiectasis". Went on coughing up mucus routinely once a day for many years. Basically ok otherwise. As years went by I got worse but still basically "ok". Then In 2020 things hit a tipping point. VERY sick in a relatively short amount of time. Saw pulmo. CT revealed cysts or abscess 5 of them. One the size of a tangerine. Sputum tests did not identify anything. But Dr thought Augmentin was my best bet and put me on it for 4 weeks. It worked. He verified that I did have Bronchiectasis once the cysts were cleared up and they could see my lungs better in a follow up CT. 1.5 years later felt sicker so took Augmentin for 2 weeks but this time it did not work. So at my suggestion he tested me for Pseudomonas which does not respond to Augmentin. Sure enough it came up very positive. It is still not clear at what point the Pseudomons got in but I feel 4 weeks of Augmentin left me open to it. But I had no choice about taking it since the cysts would have killed me. That is my story in a nutshell.

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Replies to "@blm1007blm1007 I wonder if having the name Irene is a liability? In my case I got..."

@irenea8 Thank you for the reply. My thoughts were, considering all you have responded to in posts, that you have been dealing with related issues for a long time. Nearly 28 years it appears, that is a long time, long journey.
I hear you, "So at my suggestion he tested me for Pseudomonas ." Talk about having to be your best advocate...and researcher.
"That is my story in a nut shell." It may be your story in a nutshell but the story in reality would never fit inside a nutshell...it's to big a history with many difficult and questioning times that you probably had to face.
I would imagine testing has improved since 1998, early 2000's.
My symptoms began in 2020 ..It was welcomed along with all the Covid precautionary measures put in place at that time. BE diagnosed in 2022.
Thank you again for the detail and time factor information.
Barbara