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DiscussionWhat are the lifestyle changes with permanent G-Tube?
Head & Neck Cancer | Last Active: May 14 7:38am | Replies (41)Comment receiving replies
Replies to "Hi Phil, Sorry to hear about your pending decision and swallowing challenges. I have been on..."
@praying4miracle
Most "Tubies" take baths, swim in pools or the ocean with no trouble...but public hot tubs or public pools are generally avoided. There are a number of Facebook Groups for us folks who are tied to a tube. Indeed I have learned more in those Groups than anywhere else...and I have educated many doctors as I've shared things I've learned. I've had my G-tube three years and now have the low profile MiniOne.
@praying4miracle
Donna - what does your tube look like? I'm ready to get another one because of leakage around the tube - I've had this done three times and each time the tube extender was wider around. Each time the extension is also less flexible and my clothing seems to bother it as well as movement of my arms, twisting, etc. I have a G-tube (inserted surgically rather than endoscopically). My issues started when the incision started festering and it was found the surgeon had left a drainage tube or something in my stomach.
@praying4miracle, I am now having problems with my G-tube because of the extender - can you describe what you have?
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@praying4miracle
Donna,
Thank you so much. This helps me a lot. I will talk to the Dr about stomach lining damage. I’m setting up appointments now to go to the Mayo Clinic, Rochester MN
Best life,
Phil