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Hi...Gleason 9 Stage IVB here. My treatment plan is Orgovyx/Nubeqa w/ 20 sessions IMRT. 55Gy total. No mention of other injections or additional treatment at this time. Journey started May 2025. Radiation was Oct 2025. Waiting for updated bone density numbers and 3-month bloodwork will be done next week so we'll see but, so far, so good. Standard list of side effects (hot flashes, joint pain, fatigue, etc.) but none debilitating. I am 12 years younger than your husband. Best wishes.

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Replies to "Hi...Gleason 9 Stage IVB here. My treatment plan is Orgovyx/Nubeqa w/ 20 sessions IMRT. 55Gy total...."

@mjp0512 Thanks so much for sharing this. Where were you treated?

@mjp0512
Hopefully that treatment you’re on can keep you in remission for a long period of time. I am also on Orgovyx and Nubeqa And it has worked really well for me starting it 14 years after my initial surgery.

Keep us up on how things are going. Always interesting to hear about long-term results with people that have Gleason nine.