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Post prostatectomy

Prostate Cancer | Last Active: Mar 20 7:24pm | Replies (60)

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Profile picture for dingus1 @dingus1

Hello,
New here. I honestly am an anomaly, and really don't have many resources for my situation.
I was diagnosed with Prostate Cancer in the Summer of 2025. On a yearly exam, my PSA had jumped the minimum that would require further investigation. Still relatively low with the jump from 1.7 to 2.4. I opted to have an MRI. That came back clean. Upon urging from Urologist to “make double sure” I had a TRUS Biopsy. I was reluctant to have a TRUS but was finally talked into it. My reluctance proved out and I became Septic. While recuperating from the Sepsis, my biopsy came back positive with a Gleason 7. It showed 4 tumors all with substantial cores, with 4 other areas suspected of cancer and Perineural Invasion. I turned 60 during this time. I also had a PET Scan which showed localized cancer within the prostate and nowhere else! (See footnote why) Meanwhile I was still very sick from the biopsy and had also had recurring UTI’s (which I never had before) I opted to look into all my options and dove completely into this cancer diagnosis! I had 4 separate opinions and all suggested or veered me toward a RARP. Many friends told me to look into the Seeds, and other things, and I did. However, most doctors were suggesting surgery, because “once you radiate or seed it is not possible to go back and have a prostatectomy.” So in November 2025 I had the total prostatectomy. It is important to add that I opted to have surgery at a totally different facility than where I was diagnosed.
I waited from 11/11/25 until 12/18/2025 for my Pathology on my prostate. This was extra extra long to wait for pathology so I feared the worse!
This is all where I become the “Orphan of The Group!”
I was finally told that no cancer was found in my prostate nor any trace of ever having cancer in my prostate!
Upon further investigation, my biopsy slides did not match my DNA. So I never had prostate cancer, and apparently my slides got mixed up with someone who does or did! So someone got my “clean” diagnosis” and I got their “Cancer” diagnosis!
So, here I sit in severe depression, suffering the very same side effects of a canceled prostatectomy!
I am suffering terrible anxiety and depression, along with so many other things! As of this writing (4 mos post) I am still incontinent and have full on ED. I am suffering from nightmares, and insomnia at different times.
I find myself “zoning out” and thinking it all surreal. Having to remind myself I don’t or never did have cancer! Most people try to help me by saying, “Look on the bright side, at least you don’t have cancer!’ This saying makes me want to vomit anymore!
I honestly wanted to reach out. Apparently it is not standard protocol to do a whole different set of biopsy’s. In my case, they couldn’t anyway because my prostate was so butchered up from the botched initial biopsy.
I want to also warn people to check out doctors and facilities within their state. Most states have a “Physicians Review Board” run by their respective state. These “Boards” are open so that you can research doctors and facilities on violations or even lack of!
PS. The Pet Scan lit up because my prostate was encrusted with infection from the horrible TRUS Botched Biopsy. Apparently cancer and infection will light up identical!
PSS. Stay away from Trans Rectal Biopsy’s and go the extra mile and get the biopsy that goes through the perineum!

☮️ Dingus

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Replies to "Hello, New here. I honestly am an anomaly, and really don't have many resources for my..."

@dingus1

I am sooooo sorry that you had to go through one horror after another and for NO reason - this is clear case of medical malpractice and you should keep all of that documentation in safe place.

Print out all findings and all records before they "magically" disappear !!! You should lawyer-up ASAP and ask hospital to pay for damages - both physical and emotional !

I know that no money in this world can return you your perfectly healthy gland and normal life at this point but at least you will have money to pay for all kinds of therapies that you might need, as well as for canceling, and possibly another surgery to correct incontinence and ED.
Oh my, I thought I heard it all by now : ((((
I am truly sorry that you have to suffer due to somebody else's utter incompetence !!!
Did they ever notify that other poor person that he actually HAS cancer ???
I am shocked ... to say the least : ((((

Please don't just "sit and suffer" as you say : (((( - fight for compensation ( it should be in millions) and work on full recovery with top notch doctors in all fields that are needed and you will pull yourself up and will resolve your issues < 3 . It is possible to achieve !!! You just need a good team of doctors !