I originally posted this and have failed to keep up reading these responses. It is so refreshing to know others are dealing or have dealt with the same or similar. I hate it for everyone. My last appointment did show that it appears a tiny bit of leakage may be occurring again. He did not want to do anything still but he is seeing me in a shorter amount of time. I did break down. I still have not sent my info out to the neurosurgeron at Brigham & Women's because I know he will want to take it out. I would love updates from all of you! Thank you so much for sharing. My NS is currently at UAB so at least we know he has experience with one (me). ha. He does seem to make me not worry as much because he is just hopefuly nothing ever happens.