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Brain Tumor | Last Active: May 21, 2020 | Replies (17)
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Replies to "Your response to this gave some encouragement as my granddaughter was just diagnosed this evening with..."
I would love an update on your granddaughter. I hope that she is doing well with no problems. I love that you cared to reach out to help find others in a similar situation.
So sorry to hear your grand daughter also has experienced this same rare condition. It’s been several months now since I was diagnosed and the accompanying brain fog had lifted. However, last night I had another occurrence of the violent headache. I called my neurologist and he explained there was probably some movement in the fatty like globules that were left after the initial rupture. The brain fog is back but not as bad this time. As I mentioned, I did contact the Mayo Clinic and three weeks later did get a call from their neurology department requesting any scans I had and doctors notes. I just sent them yesterday and will let you know what their response is when I get it. I hope your grand daughter is stable and improving.