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Severe chronic pain and Intrathecal pain pump

Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)

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@laurenseavertson789 Your leg pain could very likely be due to your SI joint. I read on a poster in my pain doc's office that up to 75% of people with lumbar fusions develop SI joint issues, which are not relieved by a pain pump, or at least mine wasn't. I never had sciatic pain in 14 years of back pain and 15 surgeries, only severe low back pain. One day, I developed bad pain in my buttocks, pain down the outside of my left leg and bad aching in my left knee and outside mid-calf area. I was first told it was sciatica, but a neurosurgeon said it could be the SI joint. I had a steroid injection and the pain diminished with the local anesthetic, but the steroid did not help. Last December, I had a Placental Tissue Matrix injection in both sides of my SI joint and within two weeks was almost pain free from the SI joint. It started wearing off after maybe four weeks, so I had a second set of injections in Mid-Feb and am again mostly pain free. The injections are regenerative in nature, so there is no limit on how many you can have, unlike steroids, and could lead to more permanent, or at least longer lasting, relief. The only issue is the Medicare will not cover the cost of PTM, about $800 for the injections. Medicare will however cover the cost of the injection procedure (the doctor's charge). I would ask your pain doc about them if you can afford it.

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Replies to "@laurenseavertson789 Your leg pain could very likely be due to your SI joint. I read on..."

@jcoleary I am fused C3 thru my sacrum. Think it was done thru my sacrum, due to severe pain in SI joint. I have had so many treatments etc I can't afford anything, not covered by insurance, anymore. Guess there are a few advantages to all the hardware i have? At this point, i am trying to live with limitations that i have. I had the trial, for my pain pump. While it's helping my spine, it's doing nothing for my severe leg, pain, arm & shoulder pain etc.I tried going off my oral pain pills, and i couldn't get out of bed this am. I am in agony, everywhere else. I am having to resume my oral OXY & i don't really see any benefit to the trial. I am now in much more pain. I have more pain than before. I can take my oral meds, & get the pump, but i can't deal with the horrific constipation, that comes with all these narcotics. I feel better with just the oxycontin. Guess we have to pick our poison. No pain doc, is offering me anything more at this point. I was afraid this might happen I need to be able to move a little. I can always try another doctor, but they don't seem to have much to offer me & frankly. i've wasted way to many years, in pursuit of a cure etc