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Ruptured dermoid brain tumor

Brain Tumor | Last Active: May 21, 2020 | Replies (17)

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@that_girl

Hi au99tr. I'm just seeing this so forgive me for the slow reply. I also have a dermoid brain cyst. Mine is located in the Circle of Willis just above the basilar artery, but has never ruptured. It was discovered accidentally by CAT scan when I had fainted and hit my head pretty hard. (The syncope was due to orthostatic hypotension..not the dermoid.) There was a follow-up MRI to confirm. I was advised to watch for growth, but do nothing unless symptoms arose. Unfortunately, I'm not sure what symptoms I'm supposed to look for. I have other health issues that I deal with so for me this is "out-of sight, out-of-mind". You are correct that there is very little info on the web and I actually don't know if this is something that I should be more concerned about or will die with rather than from. It would scare me if it ruptured. You didn't mention where it was located. I would love to have a Mayo neurologist weigh in on this since there is so little information out there. It is such a rare concern that information is scarce.

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Replies to "Hi au99tr. I'm just seeing this so forgive me for the slow reply. I also have..."

Thank you for the reply. That does give me some reassurance, believe it or not. Just to know someone else is leaving it alone. Mine I located in my temporal lobe adjacent to the sylvian fissure and the ruptured pieces are spread throughout but have not changed. I did meet a neurosurgeon from a hospital in Boston at a conference a couple of weeks ago that said he would probably lean towards taking it out but did say he is more aggressive with tumors and would just recommend another opinion. I don't think either option is that comforting...leaving it in or brain surgery :/ Thanks for the reply!