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Neuropathy treatments: How to avoid scams?

Neuropathy | Last Active: Apr 23 8:53pm | Replies (853)

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Profile picture for banjoman @banjoman

Yes, I have already been diagnosed by a neurologist. My symptoms were/are as follows: 1) discoloration of the lower ankles on both legs which has been the case for many years 2) scaling of skin in these areas - the skin is very thin, bumpy and susceptible to scrapes and bruises 3) pain, which is focused on the outside of my big left toe which inhibits certain exercise routines and biking. This condition was brought to the attention my podiatrist who said there was nothing he could do 4) water retention which causes swelling in the feet and ankles for which I take Lasix 5) numbness in ankles and feet.

Now, I have turned to a neurologist and, after he ran many sensory and balance has proposed a treatment plan which we are currently evaluating. Cost of the plan is in the $9,000 range. I mentioned this to my GP and she turned thumbs down essentially treating it as quackery. Since medical professionals pooh pooh the practice of neurology I have to figure out if this is a viable option or not which is why I approached this forum seeking independent reviews of the practice of neuropathy

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Replies to "Yes, I have already been diagnosed by a neurologist. My symptoms were/are as follows: 1) discoloration..."

@banjoman I did look into some of those neuropathy center type treatments early in my diagnosis after being told there are no treatments that help with the numbness. I did buy a medical grade TENS unit built for neuropathy patients and used it for a few months before ditching it. It didn't help at all and it was one of the things the neuropathy centers used along with a few other therapies that I decided not to sign up for a treatment plan.

I also have discoloration on the skin on the ankles and shins of both legs with the right being a little worse. I was diagnosed with lymphedema in my legs 7+ years ago and now wear knee high compression socks during the day to control the swelling. It definitely is worth doing your own research and it's the reason I first joined Connect to find something that may slow the progression of my neuropathy or help with the numbness. Is your neurologist a part of a neuropathy clinic? Just wondering if they have any skin in the game when it comes to signing patients up for the treatment plan?

@banjoman

Are you sure your not mistaking this neurologist for a chiropractor? Chiropractors usually run neuropathy centres and sell 9000 dollar treatments. Kind of like the Nerve Doctors on youtube. Theyre not Neurologists but chiropractors. Ive never heard of real neurologists charging that or being poo pooed by the medical community as neurologists and neurology is a real practice and real doctors. Its just that they cant really do anything after they diagnose you.

They do scoff at chiropractors though and theres a reason why insurance sometimes doesnt cover them.