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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 23 hours ago | Replies (2203)Comment receiving replies
@199 I was wondering if you had developed peripheral neuropathy after 85 infusions of Gemcitabine/Abraxane? If not, did you use cold therapy during the chemo infusions? I had 12 chemo sessions of Folfirinox, and 13 of Gemcitabine/Abraxane. No one told me about cold therapy. My peripheral neuropathy in my lower legs and feet is very bad and Folfirnox didn't seem to cause much of it but the Gemcitabine/Abraxane pushed it over a cliff. I've been off chemo for a few months now and I'm convinced the neuropathy is permanent. If I'd had 84 infusions of Gemcitabine/Abraxane, I'd be in a wheelchair.
Replies to "@199 I was wondering if you had developed peripheral neuropathy after 85 infusions of Gemcitabine/Abraxane? If..."
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@56pan Oh yes, I have peripheral neuropathy! The Gemcitabine/Abraxane is the culprit. I had heard about cold therapy for hair loss prevention but not heard about it for neuropathy. At times I wonder if I would have much pain if it were not for the chemo neuropathy pains. Right now, it feels like someone is stabbing through my second toe on the left foot with a hot needle. I walk like a duck to keep balance. I've been off chemo since 12/18/2025 & like you, I feel the neuropathy is permanent. If you would ask me what pancreatic cancer feels like I would have to say the pain & loss of feeling in my hands & feet! I tried acupuncture for a while; it seemed to have helped at that time. I still get around without a wheelchair except for large stores like Walmart :).