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Previous heart surgery & risks of surgery to remove lung net
Neuroendocrine Tumors (NETs) | Last Active: Mar 16 8:37am | Replies (21)Comment receiving replies
@aprils1957 I started off with Captem, capecitabine and temozolomide. I took it for 13 cycles which was about a year. I have been on a reduced dosage of capecitabine ever since. I was diagnosed in 8/22. The primary tumor location can vary treatment options, but there are only a few systemic options to my knowledge. Everolimus and Captem are two of them. Are you seeing a NET specialist?
Replies to "@aprils1957 I started off with Captem, capecitabine and temozolomide. I took it for 13 cycles which..."
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@tomrennie
Yes I am lucky to live in a city that has OHSU a teaching hospital and Dr Pegna is there-- a net specialist. I had a different oncologist not net special and had to change insurance companies to see him. Thanks for encouragement.