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vickysampson1989 avatar

Test result CEA, CA 19-9 and AFP

Liver Diseases | Last Active: Mar 18 7:54am | Replies (13)

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Profile picture for vickysampson1989 @vickysampson1989

@tomrennie
Thanks for sharing your story.
I have patient portal that I have a note from doctor :" AFP is slightly elevated. Tell the patient that these are somewhat nonspecific findings and we will get more information with the MRI. And will contact her with the results as soon as I receive these."
She wrote that down at my record and I call in right away. I spoke to the staff and she said :" I hate to say this but Right now there are no concern until we have the result from MRI "
My eyes tearing and I asked: " is meaning I have cancer?"
She said:" you at this point is not a cancer"
But anytime I looked back my doctor note about " non-specific finding", that just scare of me.
I have MRI with and without contrast abdominal belly on March 18.
I don't know should I stay calm after hear from staff today or still panic.

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Replies to "@tomrennie Thanks for sharing your story. I have patient portal that I have a note from..."

@vickysampson1989 Please don't panic. I believe that the doctor really doesn't know. To my knowledge, an MRI with contrast is the best way to see a HCC. Though difficult, you can't let the fear of the unknown control you. Like I mentioned, it is a process. You have to commit to every step of the process. That is all that you can control. You have already done a great job. You did your home work. You are here. You asked informed questions. You are preparing for the next steps. Don't beat yourself up. The process does a pretty good job of that all by itself ok?

You are the boss of your body. Moving forward, I suggest that you prepare interview questions for the care team that you've hired to diagnose you. Focus on that. Folks here can help. We've been there. Do you think that you can do that long enough to at least take a few deep breaths?