I think all of us can relate. I unfortunately have had Covid almost every year (except 2023 and so far not this year…yet) since 2021, each time when I feel like the symptoms are declining, bam, I get it again! I feel like it has a personal vendetta out for me lol!
I belong to a support group and we meet twice a month via zoom where we vent, cry, share information, give love, encouragement and comfort to each other. And we were discussing that it feels like we can’t trust or feel safe in our bodies anymore. Yes there are many unfortunate things that can happen to us outside of Covid, but this “condition” is such a multi system disruptor you don’t know from day to day what we are going to burden with. Crazy that I have been like this for so long that I forgot what my body used to feel like symptom free.
My Covid recovery doctor says there are still studies going on and there are some doctors that are still trying to help us. He said there is a study going on for a drug called Baricitinib a Jak 2 kinase inhibitor. So some of the medical community has not forgotten us and believe it’s a real concern.
So I know it’s harder said than done but I try to enjoy the not so bad days and push through the bad ones, between this online support and my other support group it really I mean really helps.
Sending you all love and hope!