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My Story So Far - 53yo / PSA 130

Prostate Cancer | Last Active: Apr 22 7:53pm | Replies (28)

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General update: we had our radiology consultation today. The radiologist was very knowledgeable and kind. We discussed how the technology has come along in terms of being able to target the radiation more precisely, reducing collateral damage. That said, there are no long term studies on the current techniques (since they are new), so it's difficult to say with certainty what the side effects will ultimately be, particularly long term.

The radiologist seemed certain that surgery would result in lost of potency. He also explained that my cancer seemed to be going up towards the seminal vesicle, rather than towards the rectum. This means than the rectal spacing gel could be used despite the fact that they only recently started considering usage of that for high risk cancers like mine. (The concern is that the gel ends up "pushing" cancer cells into the rectal wall, which is the opposite result of what the gel is meant to prevent.)

We remain intrigued by the possibility of more limited side effects of radiation, but it still feels like surgery is the way to go. At least the side effects are known (seems like radiation can be better but can also be worse, particularly long term). Plus I'm young. Plus having a surgeon go in there can yield more relevant information. We realize that there will likely be recurrence but the more narrowly targeted radiation for those "flares" can be far better handled than the broader radiation that would be required as a primary treatment.

The radiologist seemed clear that being on ADT gives us time to do our research and while I should have treatment by May or June, there's time to explore the alternatives. All of your comments and answers have been very helpful. Thank you.

I'm mindful of the one person in this thread whose friend had significant urinary issues after radiation - something the radiologist mentioned today as a possibility. Are there others that received radiation who have side effects (or lack thereof) to share?

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Replies to "General update: we had our radiology consultation today. The radiologist was very knowledgeable and kind. We..."

@mark10517ny Your thought process on this is sound. Although I hated the idea of surgery, I chose it simply to have a Plan B if the cancer recurred.
At your young age that is very likely simply from a timeframe point of view: you have a LOT of living left to do!
Were you in your mid 70’s radiation might be a better choice. But surgical removal will give your doctors - and you - so much more information about your particular disease…radiation will not.
Wishing you the best on your treatment,
Phil

@mark10517ny
Since the surgeon said they can probably spare the nerves, 70% chance, he can probably at least spare the nerves on one side? That can make a big difference when it comes to getting an erection after surgery.

If they can’t, you should consider and really review getting an implant, That can resolve the problems with getting an erection for the long-term and it Has very high satisfaction with people that have done it.

Sounds like you got some good information from the radiation oncologist. You don’t mention what type of radiation he recommends is it SBRT, VMAT or IMRT? Do they have MRI guided SBRT? Do they have proton radiation? The newer types of radiation can make a difference as he has told you.