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DiscussionBahhhhhh, uPSA going up : / ...
Prostate Cancer | Last Active: Mar 16 11:18am | Replies (44)Comment receiving replies
Replies to "@readandlearn Thanks for sharing your experience < 3. I will keep all that in mind."
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@surftohealth88 It’s horrible, the waiting, the anxiety, and then either the thrill of victory or the agony of defeat…totally sucks!
But, you are still dealing with minute amounts of PSA and you really can’t do anything just yet.
You know a scan probably won’t show anything - even at the magical 0.2 level, so all you can do is watch the PSA velocity and see if it continues to rise.
You may have many more months before it even gets to 0.1 - IF! - so hubby continues to heal and function better while monitoring.
Sloan-Kettering will only say PSA< 0.05 - nothing below that even concerns them (OK, yeah, it would concern ME!)
But you already knew going in all the negative factors present in your mate’s surgical pathology report and you were prepared for eventual BCR. So you planned well, and have your Plan B ready to go.
The issue is totally an emotional one: you had your game face on for months - fiercely researching, getting different opinions, figuring out all the angles…after the surgery you exhaled a big sigh of relief and felt GOOD for the first time in many months - the nightmare was almost over?🤞🤞
And now the f***ing PSA rears its ugly head once again and you are back in the quagmire of who, how, when and what…how can you not want to scream??!!
It’s almost impossible to relax, I know, but you cannot - CANNOT - control this; you will make yourself sick if you think you can.
What worked for me was acceptance of my situation: My PSA was climbing, test after test, and I was in BCR. I knew I would need radiation and ADT so why wish that I wouldn’t? It served no purpose.
With your husband’s history I would prepare, at least, for adjuvant/salvage treatment and start meeting some of the docs who might be involved in treatment.
This will give you what you need and what you do best - the opportunity to do something constructive and meaningful instead of simply waiting anxiously and being miserable.
You’re gonna get thru this!!💪
Phil