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Anyone have melanoma on the bottom of their foot?
Melanoma & Skin Cancer | Last Active: Mar 29 11:12am | Replies (24)Comment receiving replies
T2B depth, n1A, m0, final stage 3B melanoma. I was supposed to do keytruda for 13 months but only had two infusions because of the side effects.
songinmyheart54 can’t imagine how you have coped with this for so long, it’s nerve wracking. I’m so sorry it has come back to your lung ,such a nasty disease. Please keep updating here as you are able.
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@zxc142 what side effects did you have that made you go off keytruda?
I have been on keytruda since 2021 and will remain on it for life. My oncologist says melanoma hides and if I am off keytruda it will come back with a vengeance.
So I am in remission right now but I am suffering so badly with:
1. Severe breathlessness when barely walking 20-30 feet. As soon as I sit down I can breath perfectly. I use my nebulizer as a rescue inhaler as the inhalers are not strong enough. The nebulizer only lasts 30 min if even that. My doctors can not figure out why I have this problem. I cant go anywhere cause when I cant breath I feel as if I am taking my last breath. I sleep with oxygen but it does not help when I am breathless.
2. Keytruda effected my heart. My doctor sent me to a heart doctor. My bloodwork enzymes showed I was very close to a heart attack. I was put on a defibulator vest for 8 weeks while heart medicine repaired and protected my heart from keytruda. My heart was at 20% but in 8 weeks it was up to 55%.
3. Keytruda damaged my top teeth. They started turning dark and breaking off. I spent $17,000 on a permanent top bridge and at the time my bottom teeth looked good. It's been 2 years since my top teeth and now bottoms are looking darker and it looks like something is eating the enamel. I cant afford to do the bottom teeth. I had no dental insurance when my tops were done. We dipped into savings.
4. I have excruciating lower back pain. I had 2 back surgeries 10 years ago with no problems up to several months ago. My back doctor said my metal nuts and bolts look great but I have alot of arthritis. I feel my arthritis is being inflamed by keytruda but I was sent to a rheumatoligist to see if keytruda had caused an autoimmune disease with the arthritis. After checking results of previous test she said no they were not connected. I am not so sure she is correct.
I have no quality of life. I cant go anywhere for fear of being stuck somewhere breathless and at the same time my back pain is debilitating. I did buy a scooter to help me.
Keytruda is a lifesaving miracle drug.
I tell people it saved my live but it's killing me..