Replies to @hopeful33250 Thanks for the recommendation, but I was more interested in real life experiences / lessons…

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Neuroendocrine Tumors (NETs) | Last Active: Mar 11 12:31pm | Replies (16)

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@haramir

@hopeful33250 Thanks for the recommendation, but I was more interested in real life experiences / lessons learned from those who have or are going through this themselves. I suffer from pancreatitis and I share what I have learned on my own that I should/should not eat, etc. In my opinion, a dietician can provide guidance, but I have learned that people who have been through your specific health issue(s) are far more helpful.

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Replies to "@hopeful33250 Thanks for the recommendation, but I was more interested in real life experiences / lessons..."

Teresa, Volunteer Mentor | @hopeful33250 | Mar 10 2:59pm

@haramir

I found this helpful article about nutrition and NETs
- Eating Right with Neuroendocrine Tumors https://netrf.org/old-for-patients/living-with-nets/nutrition/

While I understand that you are looking for real-life experiences, here is an article from Mayo Clinic about the value of consulting with a registered dietitian when you are being treated for cancer: - How a Registered Dietitian Nutritionist (RDN) Can Help During and After Cancer Treatment https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-can-a-registered-dietitian-nutritionist-help-during-and-after-cancer-treatment/

You do not mention if your brother has had surgery for NETs. If he has, the discussion about eating after digestive tract surgery might also be helpful. Here is a link to that discussion, https://connect.mayoclinic.org/discussion/how-do-i-eat-after-digestive-tract-surgery/

Would your brother be open to a referral for a dietitian consultation?

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