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Brinsupri experience after 3+ months

MAC & Bronchiectasis | Last Active: 12 hours ago | Replies (310)

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Profile picture for crepass @crepass

I have been on brinsupri for +6 months. It has made my qol so much better. I will be going in for ct and pulmonologist f/u in april. 2 mo ago, I did notice my bp increasing with mild to moderate h/a. My pulmonologist said to go to pcp. I couldn’t get into my pcp, so went to another doctor who said to record bps and h/a occurrences. Next week i will see my regular pcp. I am concerned because My bronchiectasis has certainly improved and am hoping there is a “fix” for the headaches (mostly mild but present) and the bp(130s-140s) - my range previously was always 110-120. I am 67 and am curious how many others (statistically) are experiencing the same.

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Replies to "I have been on brinsupri for +6 months. It has made my qol so much better...."

I have been on brinsupri for 3 weeks and I am having similar blood pressure issues. Mine was usually 110-120 and now it is 120-130. I was on a webinar presentation from the European Forum on Respiratory Tract Infections and Dr Chalmers stated there was no reports of blood pressure issues during the clinical trials. Interesting. I wonder if there is a place to report these side effects?

@crepass
I actually had to stop taking Brinsupri after 3 weeks as my blood pressure skyrocketed! I have had HBP for many years and have successfully been treated for it, but Brinsupri really raised it into the 150's, 160 range. Prior to stopping, I did feel positive effects in both energy and breathing so I was very disappointed to have to stop.

@crepass I had the same problem. My BP was always low like yours. I have had to work with my PCP and try different meds but now it’s back under control.