← Return to Perineural or Tarlov cysts
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Replies to "My insurance co. finally approved my surgery thanks to Reta Honey Heiers from the Tarlov Cyst..."
Hey there. so glad rita did that. I just love that chick. She fights more for patients than most doctors do. I am hoping you might be able to help me out. Or anyone else who reads this, for that matter. I have a very unique situation, so please try to refrain from comments that might freak me out. This will makes sense when you read this. I have one TC, right, S2. I found it after I read my MRI image that was given to assess pelvic floor function after two GIs over prescribed laxatives for almost 2 years. As you can guess, this is all bowel related and it began after I witness the las Vegas shooting in 2017. I had moved to las Vegas 4 hours before the Mandalay bay shooting and had moved from an abusive situation so I was already a mess. This added stress led to constipation. I have a history of constipation when stressed and moving, plus my bowels were never clinically normal. Meaning, I would go every 2 days. I never had an issue and life was great. I went to a UC health facility that claimed to be #1. They were not. For two years now, daily, second to second I am suffering greatly. I don't have an urge to have a BM at all on my own. I was told to induce diarrhea daily, clean out my colon using fleet saline enemas and mirlalx preps (8 caps every three days to wash out) this is what led to the MRI pelvic assessment, which is where the TC was discovered. Like you, I went on YouTube, found Dr. Feigenbaum, and finally flew to Dallas the week you were having surgery. Due to my unique and complex case, its unclear if the cysts are the issue or not. To date, I suffer so much with discomfort and my main stepmoms are the lack of BM, the lack of urgency to go. What makes this complicated and hard to distinguish the pathology is the fact I have been dependent on cathartics to have a BM. In short, I have not had a solid stool in over a year. I was told to drink the preps until I force it out via fluid. This also increased daily vomiting and I gained 30 pounds in less than a year. However, I know bowel dysfunction is a symptom of S2 compression and is common with TC sufferers. I don't know if my issues are related to the cyst or what has occurred with my entire GI. As it was explained to me, the anal internal spinchters don't relax, therefore, you do not go OR you go and do not know it. Its clear that I have more issues going on here. He didn't say I need surgery ASAP. He did say that, of course, the cyst wont go away, that he can off pressure but not cure the nerves (if damage has occurred). I really like this Dr and love that is honest, to the point and consistent. With that said, my symptoms are day to day and each day I don't have a BM it causes anxiety and panic attacks, knowing in three days I have to another bottle of mirlalx. I hate this. When you, or others who might read this, say they also constipation issues, do my symptoms sound TC related? This seemed to get worse the more I was told to increase the laxatives and use more enemas. FYI, TC dilate in response to an increase in intra-abdominal pressure. This was the case with me.
1. lack or urgency to go (I use enemas daily so that might explain this in part. the rectum is absent of enough stool to activate the stretch receptors, which initiate the urge to go).
2. I have a ton of bloating and trapped gas on my descending colon. Again, the pelvic nerves S234, innervate the left side. with that said, I am not sure if the TC is responsible, even in part, for this.
3. When I do go by getting an urge, its still very very thin, but this could also be due to the lack of bulk or meals and the motegrity. Has anyone else experienced this (in a way, I hope not!). Thank you again! Hope you recover well. Its only been a month for you so hang in there.
Wow! Best of luck in your very involved recovery! I am glad you are getting pain meds to help you!