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← Return to The Caregiver’s Brain
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@pamela78 so honest + real. I’m 50, and recently became full time caregiver to my husband who’s 60. The last year or so he kept complaining of brain fog, fatigue, couldn’t watch movies anymore because they were too much for him. Stopped having conversations with me unless they were logistics; weather, timelines, food…irritable + angry all the time. December we found out he had a brain tumor the size of a large apple. In January they removed the tumor. He has glioblastoma, and Major NeuroCognitive Disorder. “Dementia”. We are currently undergoing radiation + chemo treatment. Cognition continues to fluctuate. Fatigue increases confusion. I am the schedule manager, nutrition pusher, emotional regulator, verbal punching bag.
He of course denies all the symptoms as well. Minimizing everything.
Its lonely. Silence fills the air more and more. The mere idea of a selfcare day is overwhelming. All the possibilities, and yet I’m so tired.
Replies to "@pamela78 so honest + real. I’m 50, and recently became full time caregiver to my husband..."
@amy913 I am so sorry you are having to deal with so much. We all are and it's overwhelming. I just keep saying the same thing every day to anchor myself:
Courage to take on whatever we now have to do; Clarity to know what and how to do it, and God's light to help guide us through our day, as a caregiver. We are not alone.
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@amy913 I'm so sorry this is happening to you and your husband. It's so frightening and overwhelming. And the exhaustion that just drains you and never ends is like nothing else. One day at a time. Someday you'll look back at all this, wonder how you made it through, and be proud of yourself that you did.