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If there is anyone who has had tarlov cyst surgery and can share post surgery recovery with me I would like to share xperience I had surgery in December last year Still suffering from the neuropathy I had before the surgery.
Any experience of how long it takes for nerve recovery would be most helpful.I am desperate as there has been no improvement in my condition post surgery despite a harrowing three months of other complications like urine retention
Replies to "If there is anyone who has had tarlov cyst surgery and can share post surgery recovery..."
Anita, I'm so sorry to hear that you haven't seen any improvement yet and are still suffering. You know, recovery is going to be different for all of us. There are numerous factors that affect the outcome of surgery. How long did you have the symptoms prior to surgery? How badly the cysts are compressing the nerves, possibly where they are located, etc. As soon as my insurance co. gives in I am going to have surgery with Dr. Feigenbaum in Dallas, TX. I'm pretty much bedridden with all these symptoms. I've been fighting them via the grievance and appeals process. May I ask who your surgeon is? I would think they should have given you post-op instructions and talked to you about the recovery process. Aside from reading about other people's experiences, I have found the info. on Dr. Feigenbaum's website to be most helpful. https://www.frankfeigenbaum.com/post-op-information/tarlovmeningeal-cyst-post-operative-instructions Unfortunately, recovery can take up to 2 years and sometimes more. This is because nerves heal and regenerate very slowly. As with any back/nerve surgery there is no way to guarantee a great recovery. You will probably never be 100% again but there should be some improvement. It seems like there are many more positive outcomes than not. Also, arachnoiditis goes hand in hand with Tarlov cysts. I found extremely valuable information at http://www.arachnoiditishope.com I urge anyone with Tarlov cysts to go to that site and do some reading. Please note that I am not a medical professional and my suggestions come purely from my experience and opinion. I wish for your recovery to start going a bit faster for you. If there are any other questions you have don't hesitate to ask. There are many members on here that have excellent advice for you. Take care!
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Hi, @anita1940, and welcome to Mayo Clinic Connect. I think it makes sense to talk to others who've had a similar surgery to "compare notes." I get it that spending a harrowing three months postsurgery with complications and then not seeing the improvements you'd hoped for from the surgery would be difficult. I had a bladder prolapse surgery that included about that long of a recovery. I would have been incredibly discouraged, having given that much of my life to that surgery, if it didn't help me in the end.
Hoping that others who've talked about tarlov cysts will have some information and thoughts for you about how things went for them after the surgery and any timeline for how long nerve recovery may have taken for them. Please meet @jenapower @bill54321 @arlenejc @qball2019 @cookiegirl.
What are your surgeon's expectations for timeline with improvements postsurgery, anita1940?