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Welcome!! No need to feel like you're rattling on. I felt the same way as you do when I first found this site. I am sorry you've had to deal with the symptoms of the cysts for so long. I've done it for 16 years and your story sounds the same as mine. It's rare to find a doctor that will acknowledge the cysts. You just keep going from doctor to doctor until you find one or some that are willing to look into the cysts. I can tell you that you can either request that your PCP refer you to Dr. Feigenbaum or you can just go yourself. They prefer a referral though. You have the right to be referred anywhere you want. I went to see him and am now fighting with my insurance. They don't want to cover it. If your doctor doesn't want to have the MRI done then when you touch base with Dr. Feigenbaum's office and let them know that. They may be able to order it themselves or pull some strings.
I know what you mean about being treated like a drug seeking patient and how family members look at you sideways. I was in the same boat for a long time. There are family members that don't think there is anything wrong with me and think I'm just lazy. It makes dealing with the cysts so much worse.
Please keep us updated about your MRI. In the meantime, take care!
Terri
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@betsy63 I also have a Tarlov cyst which was acknowledged on my last MRI in July 2019. I have back pain for years and recently diagnosed with peripheral neuropathy. I do not have diabetes so they call it idiopathic. Idiopathic is a word used to describe "No known cause" No known cause means the doctors can't associate it with typical cause such as diabetes or auto immune and just would rather treat the symptoms. I have had prior MRI's and a Tarlov cyst did not or was not acknowledged on the MRI. I am thinking it may have been there on prior MRI's , but not reported. I asked my doctor about this "New" finding and was completely brushed off with "Many people have them" with it is not a problem. I had not heard the word Tarlov cyst until then and now I am reading that there are others on this site experiencing pain in their back and other similar issues that I have and have been diagnosed with Tarlov cysts. I thank you for sharing this and giving me a push to learn more about Tarlov cysts and also talk more to my doctor about this.