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Perineural or Tarlov cysts

Spine Health | Last Active: Apr 18 5:37am | Replies (96)

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@qball2019

Sorry for the extra reply but...

Do you also have issues with your bladder or bowels? I have had issues with my bladder since 2003 and lost control of my bowels in June of last year. These are both symptoms of cauda equina syndrome. It's normally an emergency for other people but if it's because of Tarlov cysts it won't be unless the doctor you have will admit that the cysts cause issues. It's really a terrible shame because there can be some serious nerve damaged caused by waiting.

I also forgot to mention that my cysts have shown up on my MRI & CT scans all the way back to 2003. Nothing was ever mentioned to me about them until last year! Also, there were only 3 cysts noted in my report but the neurosurgeon found 5 or 6 (he won't know how many for sure until he's in there) and a fatty filium. The fatty filium is also called a tethered cord which normally happens at birth but can also happen with an injury. Mine happened with the injury. Interesting thing is that he said when he releases the tethered cord it may or may not release the pain in my back. The tethered cord has never been mentioned before either so I was surprised by that one. Must be another "incidental finding". I'm finding that there are lots of those.

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Replies to "Sorry for the extra reply but... Do you also have issues with your bladder or bowels?..."

I am also diagnosed with tethered cord syndrome and tarlov cyst in sacrum. Have you got your surgery done yet? I am interviewing neurosurgeons for my surgery.