Should I get a port?

Posted by hlthcr2000 @hlthcr2000, Mar 6 12:50pm

Should I get a port? I'm prescribed 6 infusions: taxol, carbo, and Trastuzumab. The port is a last minute decision...the person who is responsible for guiding me is out of the office all next week so I need to decide with very little info!

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Profile picture for ffr @ffr

Sometimes, we learn the hard way because we don’t know what we don’t know until we are into it.
I had a meltdown at both insertion and removal and felt unnecessarily judged both times.
Thankfully, there were kind nurses who tried to support me but the PAs and techs just wanted to get on with it. Looking back, these were the only times I ever fell apart from diagnosis day until now. 😞

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@ffr
My port insertion was done with day surgery and I was totally knocked out. In and out of day surgery in about 4 hours. I told them I was afraid and they opened my IV with meds before I got to the operating room. Knocked out on the way there!
Take care

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Profile picture for charlotte12 @charlotte12

I did not get a port for chemotherapy or immunotherapy but regret it now. Some IV nurses struggled to find a vein. It took more than one try sometimes to get the catheter working. There were two skilled nurses who were gifted to make it look easy. Phlebotomists had difficulty to draw blood and bruised up my veins. During chemotherapy blood was drawn weekly, after that every 3 weeks for a year. It caused me additional stress not knowing which nurse or phlebotomist would be assigned and what skill level they had.

In an other discussion one group member noted that the port
can get "plugged" or "sore". While I was waiting for an infusion one patient expressed disappointment about her port. There was no time
for more details.

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@charlotte12
My doctor never recommended the port but the infusion center nurses wanted to know why I didn't have one. After seeing other patients with a port I told them I want one!
Yes, my port clogged already and they have clog busting drugs that work. But most of the time they get it going by having me cough, push in saline quickly, lay back and breathe deep, stand and cough. They have always made my port work with little discomfort to me.

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I’m also an emphatic yes. You are saving your veins for the future and making it easier on yourself now. There will still be times they need to do blood draws and cannot use the port; save your veins for those. I think for some people it is an acceptance issue, but you can always have the port removed if you are one of the very lucky ones for whom this does not come back. Those six infusions are just estimates and then there are all the blood draws. I’m two years in and even with a port my arm veins have suffered greatly. Please do yourself a favor and get one. Just make sure you have a surgeon who does lots of them. I have had zero issues with mine.

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Thanks, Julie, appreciate it.

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Profile picture for dj12 @dj12

@ffr
My port insertion was done with day surgery and I was totally knocked out. In and out of day surgery in about 4 hours. I told them I was afraid and they opened my IV with meds before I got to the operating room. Knocked out on the way there!
Take care

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@dj12 Thanks, appreciate the reply.

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Profile picture for dj12 @dj12

@charlotte12
My doctor never recommended the port but the infusion center nurses wanted to know why I didn't have one. After seeing other patients with a port I told them I want one!
Yes, my port clogged already and they have clog busting drugs that work. But most of the time they get it going by having me cough, push in saline quickly, lay back and breathe deep, stand and cough. They have always made my port work with little discomfort to me.

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@dj12Thanks. This was a surprise to me- my surgeon didn't mention it

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It is much easier to get the chemotherapy infusions through the port. I had six cycles of chemo in 2008 without the port, and it became too difficult for the regular nurse to find my vein, and a hospital specialist had to do it. In 2022, when my ovarian cancer, I got a port—much easier, less painful, less anxiety!

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Profile picture for hlthcr2000 @hlthcr2000

@dj12Thanks. This was a surprise to me- my surgeon didn't mention it

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People keep asking me when am I going to get my port removed. I tell them when I’m 5 years cancer free. That hasn’t happened, so I still have it.
My port was also inserted under a general anaesthetic. No way would I let them do it with a local!

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Thanks. Appreciate you sharing and hoping you get that port out and remain cancer free! 💗

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