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Has anyone with PMR been able to get off prednisolone?
Polymyalgia Rheumatica (PMR) | Last Active: Mar 24 11:39am | Replies (51)Comment receiving replies
I came off prednisone in mid-December after being on and off it for over a year. Coming off my first taper in June I had worse symptoms than before I started taking it, mostly in my shoulders which were unaffected prior. It's been a rough few months with pain, fatigue and inflammation but my lab tests show that my pituitary and adrenal function are normal now which was a big concern for me being on prednisone. I never liked the idea of a drug replacing my body's natural hormones.
As far as treatment without meds, I am trying different things like acupuncture, faschia stretching, kinesiology and have recently been looking into pain reprocessing therapy which I'm not quite sure about but we'll see. In the meantime I'm trying to stay hopeful and positive despite the discomfort. I may give in and end up back on prednisone at some point but trying not to.
Replies to "I came off prednisone in mid-December after being on and off it for over a year...."
@rosi75 Hi
I am off Prednisone for a month. I took it for a year. I had many side effects. Sometimes it was really difficult, but each week got better to handle . Not being able to get out of bed alone and even walk was a nightmare. I learned so much patience, listening to to my Dr, reading and a more positive atttitude. I don’t want to take that drug
Again. I walk avidly. I am 83 and doing so well. I am grateful and have Children and Grandchildren and Great Grandchildren. Getting ready to Celebrate 65 years of marriage to the boy I love so much. So many Blessing's. Life has its ups and downs we learn to live with change and heartache and grief. Keep keepin on and remember others care about you. Thanks for sharing. Warm hugs , Donna
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@rosi75
Strange condition; mine began with the shoulder pain. I empathise with the pain and fatigue. Everyday activities drain my energy. Rheumatologist said this is typical. Good luck with the alternatives to medication. I found the John Hopkins Yoga series a great help.
I hope you can continue without prednisolone; the comments have been encouraging so I remain hopeful. All the best.