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Just diagnosed with HPV cancer in the vaginal walls: Need support
Gynecologic Cancers | Last Active: Mar 24 7:13pm | Replies (14)Comment receiving replies
@terriwright69 Welcome to our Support Group on Gynecological Cancers. I hope you will find the support and shared experiences as helpful as many of us in this group.
I did some research on Mayo Clinic Connect by typing the following - HPV vagina-- into the Search Bar at the top of the page. There are some discussions on HPV and vagina. While I realize these discussions may not be exactly the same as your diagnosis the members who provided support have lots to share that you may find helpful.
-- https://connect.mayoclinic.org/discussion/vaginal-and-anal-cancer-after-hpv-stage-2/
-- https://connect.mayoclinic.org/discussion/vaginal-cancer-diagnosis/
I am tagging a few of our members in this support group who have joined these discussions on vaginal cancer. @bunyipbaba @leahchawkins
What treatment has been recommended by your oncologist?
Replies to "@terriwright69 Welcome to our Support Group on Gynecological Cancers. I hope you will find the support..."
@naturegirl5 I will know Wednesday what they recommend for the treatment plan
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@naturegirl5
My tumor was too close to my urethra, so surgery was not an option. I had 33 radiation treatments and 5 out of 6 chemotherapy treatments. The chemo damaged my kidneys so I am left with Stage 3B kidney disease, and lymphedema. I finished treatment in July of 2025, so in essence I’m still recovering. I had HPV 30 years ago and had a total abdominal hysterectomy and naively thought it was gone, never to return. But almost 2 years ago, I noticed bleeding on my running shorts and then urinary incontinence. So after a few bad gyne appointments, I sought out Mayo.