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Which Seizure Trigger Is Your Hardest Battle?
Epilepsy & Seizures | Last Active: 1 day ago | Replies (49)Comment receiving replies
Thank you all for the triggers of seizures that can occur. Since I’m new to seizures. I’ll have to pay attention to what triggers it. Since I’m only used to a seizure happening if a bleed on the brain occurs. But I have to say that I’ve cut out caffeine since after surgery I’ve noticed the feelings of a seizure but I do drink decaf and I’m okay. In this short period of time I do notice lack of sleep that triggers as my Dr said “focal seizure”. That type is the most weird part of a symptom being a wake the entire time and trying to shake the feeling of it. He has increased my dosage of this new medication. He is wanting me to have this sleep deprivation EEG test but my insurance is having me wait. The Dr wants to know which part is triggering this.
Replies to "Thank you all for the triggers of seizures that can occur. Since I’m new to seizures...."
@tkmoyer3
I'm amazed to hear how many of you have had seizures triggered by caffeine! I'm glad to know that decaf has been working as a solution for you. Born in Brazil, where coffee is practically a cultural institution, and having spent quite a while in the coffee industry, giving up coffee entirely — regular or decaf — would be a real challenge for me, I must confess!
Since the concept of triggers is new to you, I'd suggest starting with a diary as Dr. Andrews recommended when I began working with her on trigger management. It helped me enormously in identifying my own triggers. Sleep deprivation, for instance, is known to be one of the most common ones.
How have you been doing since the increase in your medication?
Chris
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@tkmoyer3 TK, first is your insurance and the EEG test. When my insurance company gave me problems, my neurologist stepped in immediately. His goal was to find who was the "actual" person that was approving or disapproving. He acted within 2 days or less, not giving that "actual" person time to shift the blame of disapproval to subordinates. He did not do anything unethical; just trying to get his patient help ASAP. He went into detail of why I needed their cooperation and the insurance company always obliged his request. If your physician acts as an intermediary immediately with the insurance company, you'll likely get financial success; BUT he has to be willing to put in the time for you. 2nd, on the decaf coffee; I've contacted 2 coffee companies who presently do not make decaf. I explained (not complained) that they are missing a big market because of people who have medical conditions that require decaf. One company seemed to have real interest. So, I gave them an example of the lost market such as those who have a seizure condition. After the word seizure, they had no interest. Anyway, try to get your doctor to be more proactive on your behalf.