@eesnerd

How was your diagnosis confirmed? I get abdominal CT-scans every year to monitor my kidney stones. Something "suspicious" in my distal ileum was seen on my last CT-scan. It was decided that the suspicious thing should be investigated.

I got the results from my chromogranin A and serotonin levels. Those labs don't confirm anything but my levels were high. I'm not symptomatic but Dr. Google said my levels were consistent with a carcinoid tumor. I was going to have a capsule endoscopy done. Now my primary care doctor has ordered a Dotatate scan because the capsule endoscopy won't confirm anything either.

I don't have any symptoms of carcinoid syndrome. I'm not looking forward to the Dotascan results. I'm thinking I should just skip the Dotatate scan but now I'm curious about the suspicious thing. I'm worried about what else they will find. If the Dotatate scan confirms a NET --- I'm not looking forward to the treatment either.

I could have the Dotatate scan next week but I have travel plans-cruise to Europe. The Dotatate scan won't be done until early April. Any advice about traveling?? --- my wife thinks I'm being stupid but that isn't a new symptom. My primary care doctor says a NET is slow growing so waiting until April for the Dotatate scan should be okay.