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MCI with Aphasia: How to help my partner feel included?
Caregivers: Dementia | Last Active: Mar 21 5:14pm | Replies (8)Comment receiving replies
@scottrl Thank you for your reply. Your situation sounds very challenging also. I think if I am more cognizant while we are around our friends I might be able to see what is happening from his perspective. I’ve also wondered where he is looking. This might not be one sided. Hang in there and I’ll do the same.
Replies to "@scottrl Thank you for your reply. Your situation sounds very challenging also. I think if I..."
@mickey5455, you might be interested in these (somewhat) related blog posts by Mayo experts:
- Should I Tell My Family About My MCI? https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/should-i-tell-my-family-about-my-mci/
- Who Else Besides Family Should I Tell About My MCI?https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/who-else-besides-family-should-i-tell-about-my-mci/
- “I Already Told You That”- When Memory Affects Communication https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/i-already-told-you-that-when-memory-affects-communication/
Maybe more related is this discussion:
- How does sharing diagnosis of Alzheimer's affect patient?https://connect.mayoclinic.org/discussion/how-does-sharing-diagnosis-of-alzheimers-affect-patient/
It must be hard on your husband noticing that he's not being included. Even simple eye contact helps people be seen. Are you able to share with your friends privately to be more concientious about including him?
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@mickey5455 Thank you.
I'm trying to make the best of it. People have told me that my journey is inspiring, so three years ago I started a YouTube channel, "From Recovery to Discovery".
https://m.youtube.com/@srlucado/videos
I've also given a couple of talks locally, and just the other day the first part of an interview with me was posted on YouTube.
The online presence is a stark contrast to my home life, which is quite isolated due to my lack of mobility. For example, it's been six years since I had lunch with a friend.