@ambika
Rick Davis was a Gleason 8. I don’t remember him ever mentioning having ADT. You can ask him yourself on Tuesday at 3 PM Pacific time. If you go to ancan.org You can sign up for the meeting and get the newsletter. He sends it out every week. It has some pretty incredible information about the latest things going on in prostate Cancer treatment. You don’t have to sign up that you can just go to the meeting. You need to install GOTO meeting To attend the meeting. Type in answercancer as the name of the meeting. It’s available for every device. If you attend the meeting, get there 10 minutes early and you will be called on first to discuss your case and come up with Solutions. They’ve been doing this for 15 years and know a considerable amount. There’s always at least three doctors in the meetings.
If your husband has even one, Gleason nine, he is a Gleason nine the sevens are irrelevant.
The Urinary problems from radiation are short term in almost all cases. I had eight weeks of it and never had any urinary problems. Radiation seldom causes ED immediately, If you have surgery and they can spare the nerves that also can prevent ED. The thing is radiation, usually destroys the nerves, It’s possible to get an erection for a while, but eventually it goes away for most people.
Hormone therapy takes away the desire for sex and for most people prevents getting an erection. You can work around it by using a penis pump or the most successful thing is Trimix or Bimix. That requires injecting it into the penis, but it is a very small needle and really causes minimal pain. That can get him an erection for a couple of hours. You can also have an implant installed, Works quite well and Has a high satisfaction rate.
A decipher test does not test for genetic problems. You want to get an hereditary, genetic test? It is covered by insurance and most medical facilities will do it. They always have to send it away To be analyzed. Just tell your doctor you want one. If there is cancer in the family, Breast cancer, Pancreatic cancer, Prostate cancer and others then it is more likely that he would have a genetic problem and doctors would Desire to have the test done. Another reason you want to do it is you wanna make sure your children don’t have a genetic problem inherited from him. I inherited mine from my mother.
Estradiol is just as effective as ADT to keep testosterone down to Very low level levels. Do some searching for the Patch clinical trial, That’s the one that showed it definitely works. It has not been approved by the FDA because no one wants to run the test in the USA since the product is so cheap to buy. Richard Wassersug Who wrote a book on ADT has been on estradiol for 22 years, he has not become castrated resistant and has almost no testosterone. It is kept his cancer at bay all this time.
BRCA2 is a genetic hereditary problem that causes an Increased risk of prostate. Breast and pancreatic cancer, As well as a few others cancers. There are a number of genetic problems that caused similar issues. You can look up BRCA2 on the Internet and you will find out a lot of information. I got prostate cancer at 62 because my father died from it, and my mother gave me BRCA2. My brother got it at 77 because my father died from it But he didn’t have BRCA2.
Having a parent or sibling get prostate cancer increases the risk of getting it by over 100%.
@jeffmarc
Thanks so much for all that information. What is the name for hereditary, genetic test you mentioned? Are they called Guardant 360 and Foundation One? I got that information from Dr. Mark a scholz videos.
Decipher and Prolaris are genomic tests to assess and predict prostate cancer spread and aggressiveness.
I still don’t know the difference between genetic and genomic tests though.
I think a patient can ask for both genetic and genomic tests to be done because unless those tests are done no one knows what one is predisposed to.
You mentioned BRACA mutation tests (Dr. Scholz says in his videos that 5% of people have BRCA mutation and they are given PARP Inhibitors that blocks PARP enzyme in cells.
I guess I can ask for the BRCA mutation tests too.
You said “ Estradiol is just as effective as ADT to keep testosterone down to Very low level levels”. Did you take Estradiol instead of ADT drug’s? The radiation oncologist such as Dr. Mach Roach (if he recommends ADT) perhaps will not agree to Estradiol or will not prescribe it. In that case how could one find a doctor who will write Estradiol prescription.
I am assuming that you are suggesting Estradiol not just on the grounds of cost but also for escaping ADT side-effects.
I will definitely set up a meeting with Rick Davis
Thanks a lot for your support. I highly appreciate that.