1. < Gynecologic Cancers
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How soon after hysterectomy did you start chemo?

Posted by hlthcr2000 @hlthcr2000, Mar 3 2:21pm

My doctor's coordinator said last week at my visit that she'd send me a telemedicine request for an education session prior to chemo. It will be a week tomorrow and I haven't heard from her. My hysterectomy was a month ago this coming Friday. My daughter - who has a solid biotech background- is questioning the wait and thinks I should call twice a day every day until they schedule that call and give me a chemo schedule. Opinions? Experience?

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jeanknoll986 | @jeanknoll986 | Mar 7 10:25am
In reply to @hlthcr2000 "Thanks. After multiple (!!!) calls I was finally scheduled for my chemo. Love my doc and..." + (show)
Profile picture for hlthcr2000 @hlthcr2000

Thanks. After multiple (!!!) calls I was finally scheduled for my chemo. Love my doc and his nurse but the support staff was not responsive. Pushed by my daughter, I adopted the squeaky wheel behavior and got all my dates.

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@hlthcr2000 Glad to hear this. I began chemo about 5 weeks after surgery. I had 6 cycles, 21 days between each, and had to be delayed once b/c my blood went low. Hang in there, as chemo can be challenging, but 3 blood transfusions and 27 radiation treatments later, I could almost believe none of my treatment happened. I feel that good now (1 yr post chemo this month). You are stronger than you know, and our bodies can handle a lot! Reach out here when you need support.It does help. 🤗

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Helen, Volunteer Mentor | @naturegirl5 | Mar 7 10:57am
In reply to @hlthcr2000 "Thanks. After multiple (!!!) calls I was finally scheduled for my chemo. Love my doc and..." + (show)
Profile picture for hlthcr2000 @hlthcr2000

Thanks. After multiple (!!!) calls I was finally scheduled for my chemo. Love my doc and his nurse but the support staff was not responsive. Pushed by my daughter, I adopted the squeaky wheel behavior and got all my dates.

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@hlthcr2000 The squeaky wheel approach works!!

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marina22 | @marina22 | Mar 7 3:47pm

My chemo started 5 weeks from surgery. Our bodies need to heal sufficiently so that it can handle the toxicity of chemo and decrease chance of infection. I would call them to follow up, being stressed is not good for your immune system. Love and strength 💪❤️

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sprpatterson | @sprpatterson | Mar 8 6:31pm

I started chemo within two weeks of my hysterectomy. My doctor wanted to start quickly.

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hlthcr2000 | @hlthcr2000 | Mar 8 7:16pm

Wow! Impressed. You would think there would be a standard- with exceptions for those who have issues after surgery.

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jenelleseaman | @jenelleseaman | Mar 9 5:07am
In reply to @hlthcr2000 "@jenelleseaman you have been through so much and I’m sure you will be in the thoughts..." + (show)
Profile picture for hlthcr2000 @hlthcr2000

@jenelleseaman
you have been through so much and I’m sure you will be in the thoughts and prayers of any members who read this. Thank you for taking the time to reply. I’m hoping you have a strong support system to get you through this latest setback. Sending you a virtual rose from my garden and hope it brings a smile.

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@hlthcr2000 Thanks for the virtual roses! The first cycle of topotecan was as expected. Nausea and fatigue. Not as bad as carboplatin though. I see the eye specialist Wednesday having done an MRI of my head last Saturday! They found my brain … I have one!
I also found out that I’m pre diabetic. Not unexpected because of the Whipples procedure in 2021.
I’m keeping all my doctors guessing! And adding a few new ones to the list as well.

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