@tuckerp

I doubt it ... unless I push harder to come off Actemra. I have mentioned stopping Actemra to my rheumatologist a couple of times. My rheumatologist gets this puzzled look on his face and asks me why? I don't really want to stop Actemra so we agree to discuss it later.

I might have a compelling reason to stop Actemra. It isn't an official diagnosis yet. My prostate is large. I also have kidney stones in both kidneys that are monitored on an annual basis with a routine CT-scan. The CT-scan shows my adrenals and all of my internal organs.

The CT-scan from last year showed something suspicious that needed some investigation. The suspicious thing wasn't too concerning until some labs were drawn. The labs don't confirm anything but a Dotatate scan was ordered.

A Dotatate scan is a whole body scan so there might be a lot to look at. The results might explain why so many of my hormone levels are abnormal. I have seen an endocrinologist since I tapered off prednisone. I'm learning a lot about hormones.

I'm getting ready to do a cruise to Europe. The suspicious thing grows very slowly . The Dotatate scan will be done in early April when I return.